Why Patient Advocacy Matters

Why Patient Advocacy Matters

There are a lot of ways in which the human genetic code can go wrong. Even beyond that, other conditions can plague individuals for their entire lives.   With so much out there, it’s a wonder sometimes that we live as long as we do.   Across the world, small groups of...
The Human Element of Gene Therapy

The Human Element of Gene Therapy

Gene therapy stands on a precipice. It is poised to make a massive positive impact on the lives of many with genetic disorders. However, as research moves forward, it is important to consider the human concerns that are involved in implementing these practices. If...
Surmounting Patient Access Challenges

Surmounting Patient Access Challenges

Even with widespread and well-known patient concerns about the pricing of healthcare services, one of the most contentious issues for patients is being able to even access the care or information that they need. After all, patient engagement only works when they are...
Gene Therapy And Rare Diseases

Gene Therapy And Rare Diseases

The recent proliferation of gene therapy solutions has led to new possible outcomes for patients and those suffering from a variety of diseases. In particular, gene editing tools such as CRISPR have been lauded for their potential to help treat and understand these...